A Little Good News Today
Yesterday was difficult.
There was some mix-up with Zen Baby’s testing schedule that led to them not allowing her to eat for over 9 hours. Yeah. Let’s keep the freaked out, breastfed 12 month old from nursing, at all, for an entire day. Because baby and mama won’t mind that scenario at all.
I was not impressed. But Grampa was a saint. I had been told not to feed her after 4:30 am so that she’d be ready to go bright and early. For a test that I’d been told Friday would be occuring, but that no one actually bothered to schedule. (Did I mention I was a bit annoyed?).
Anyway, by 9 am Zen Baby was a little, shall we say, less than zen. So I called my parents and my dad immediately came up and became her primary caregiver until they finally sedated her at 1:30. He was wonderful. Soothing, comforting, walking the halls and everywhere. I am so grateful and lucky that he’s my dad and her Grampa.
He did the same thing today for the test that should’ve been done yesterday even though it was only going to be a couple of ugly hours for us. So blessed.
And keep those prayers, vibes, etc. coming, because there could be good news. Zen Baby’s illness may not be as bad as originally thought. This testing, though annoying and stressful, has revealed new options for diagnosis. There’s a possibility that the type of tumour she has is so incredibly rare that the entire medical staff had to go back to the books to learn about it. And if it is that kind, her presentation makes it even more rare still.
Which sounds scary. Except that it’s 100% curable. So we want it to be that. Pray for that.
It’s really boring here. But it’s a tedium built on terror. So in some ways, boring is good. Boring is *much* better than beeping. But, boring is also still boring, and I don’t do well with boring. And Zen Baby is still healthy enough that neither does she.